Say What Doc?

We had our follow-up appt. at the International Adoption Clinic this week. We consulted with this group during our initial review of Nate's paperwork. I can not say enough good words about the doctors at Johns Hopkins in the Child Health Building. We had a lot of blood work drawn (most of which has common back negative, still waiting on some of the longer tests), a PPD shot, an X-ray to make sure the metal plate was removed from his broken femur (the medical records were a little hard to read) and a visit to the dermatologist. All of this in one building on the same day, we loved it!! Not sure what he thought about it though!


While at the dermatologist we discovered his "special need" had been misdiagnosed. He has something called Blue Rubber Bleb Nevus Syndrome, who thought that up? It is fairly rare, so we felt like we were in good hands. The doctors see a few other patients who have this and are doing fine. The major concern at the moment is that we need to get an MRI to look at his enlarged thigh (it is probably a big bleb) and his stomach and intestines. You can have the blebs inside and you want to make sure they aren't bleeding. We are waiting for the MRI to be scheduled because the doctor we saw will be there as his anesthesiologist.

What a great area we live in here in Baltimore, Nate has so many medical resources available to him 20 minutes down the road. What a blessing! We will keep you posted!

----Susanne